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on therapeutic options for ultra-rare diseases, interdisciplinary partnership and the active involvement of patients in this process

Sponsors:

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Thank you for participating in the conference!

Encouraged by its success and the positive feedback,

we are planning the next edition for autumn 2026.

Conference Programme & Speakers | September 2024

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In case of any questions, contact us: pacs2research@gmail.com

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ABOUT US >

We are Malgorzata & Piotr, parents of little twin girls - one of them, Lena, is impacted by PACS2 mutation. We strive for finding the treatment for Lena and all children suffering from this syndrome.

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If you want to get engaged in research, please contact us.

If you are a caregiver of PACS2 child - do not hesitate to write to us in case of any questions - we will try to help.

CONTACT >

info@pacs2research.org

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© 2024 | Fundacja PACS2 Research Foundation

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