top of page

< back to the home page

WUM_EN_pion_BIAŁY_bez tła_DRUK.png
WUM_CCRN_transparentne.png

invite you to the conference

UNLOCKING HOPE (1).png

on therapeutic options for ultra-rare diseases, interdisciplinary partnership and the active involvement of patients in this process

 4-5 SEPTEMBER | MEDICAL UNIVERSITY OF WARSAW

Sponsors:

charles_river_logo.jpg
Takeda_logo.png
AZ_logo.png

Confirmed speakers from:

conference partners_EN_edited.png
Broad_original_edited_edited_edited.jpg

In case of any questions, contact us: pacs2research@gmail.com

rodzina Kosla.jpg

ABOUT US >

We are Malgorzata & Piotr, parents of little twin girls - one of them, Lena, is impacted by PACS2 mutation. We strive for finding the treatment for Lena and all children suffering from this syndrome.

​

If you want to get engaged in research, please contact us.

If you are a caregiver of PACS2 child - do not hesitate to write to us in case of any questions - we will try to help.

CONTACT >

info@pacs2research.org

  • Instagram
  • LinkedIn
  • Facebook

© 2024 | Fundacja PACS2 Research Foundation

bottom of page