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Media releases

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Painting a Picture
of Hope to Treat PACS2

E79 episode of Charles River podcast
in eureca dose of science, 2024
(in English)

How one family is driving research efforts for Rare Disease treatments at the IDRM

News of Institute of Developmental and Regenerative Medicine, University of Oxford, 2023
(in English)

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Sprawa dla Reportera

Episode of Polish reportage / intervention program, Polish National Television (TVP), 02.01.2025

(in Polish)

Four children in Poland suffer from PACS-2. There is no cure for this disease.

Onet Rano, Polish online morning programme, 2024
(in Polish)

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Dzien dobry TVN

Polish main morning television (TVN), 2022

(in Polish)

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ABOUT US >

We are Malgorzata & Piotr, parents of little twin girls - one of them, Lena, is impacted by PACS2 mutation. We strive for finding the treatment for Lena and all children suffering from this syndrome.

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If you want to get engaged in research, please contact us.

If you are a caregiver of PACS2 child - do not hesitate to write to us in case of any questions - we will try to help.

CONTACT >

info@pacs2research.org

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© 2024 | Fundacja PACS2 Research Foundation

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