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Fundraising supporting materials

We managed to engage exceptional scientists and physicians to work on PACS2 syndrome understanding and treatment development. The key challenge now is to get funding for planned research.

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Do you want to support our efforts and organize fundraising action? We are DELIGHTED! <3 

We prepared materials that will help you realize that purpose.
Personalized story and Personalized leaflet are materials dedicated to PACS2 patients' caregivers. 

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ABOUT US >

We are Malgorzata & Piotr, parents of little twin girls - one of them, Lena, is impacted by PACS2 mutation. We strive for finding the treatment for Lena and all children suffering from this syndrome.

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If you want to get engaged in research, please contact us.

If you are a caregiver of PACS2 child - do not hesitate to write to us in case of any questions - we will try to help.

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