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Eva

Born in

GEORGIA

 Eva lives with PACS2 gene mutation. She was suffering from seizures at infancy. She started sitting and rolling at the age of one year. Eva and her parents didn’t give up and with the help of therapies today her development is like other kids of her age. She started walking at the age of 3 years. Sometimes walking becomes a challenge for her and needs some help and assistance from her family members. She is a very smart girl. She makes our life brighter. 

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ABOUT US >

We are Malgorzata & Piotr, parents of little twin girls - one of them, Lena, is impacted by PACS2 mutation. We strive for finding the treatment for Lena and all children suffering from this syndrome.

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If you want to get engaged in research, please contact us.

If you are a caregiver of PACS2 child - do not hesitate to write to us in case of any questions - we will try to help.

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